Screening Test
A new cancer screening program has the potential to save
more than 1000 lives each year, but experts worry about inadequate resourcing.
Lynnette Hoffman reports
JOHN Scott has not forgotten the words his doctor uttered well over a decade
ago when he cleared the 18-month mark after being diagnosed with an advanced
form of bowel cancer. No comforting words such as `You're doing well', or `I'm
impressed with your progress', or anything close to celebratory.
``Keep your fingers crossed,'' the doctor told him.
To Scott's wife, in private, the doctor confided that the
gloomy prognosis of 12 to 18 months was actually an optimistic one _ in truth
her husband would be lucky to live past six months.
As it turned out, luck was well and truly on Scott's side. Fifteen years on,
he's still here.
But there are two things he remains acutely aware of. His cancer could very
well have abruptly cut his life short at 52 _ bowel cancer is, after all,
responsible for more deaths in
Australia than any other cancer except lung cancer.
And many of the discomforts and unpleasantness he still endures today, such as
a ``weakness'' that sends him to the toilet countless times a day, sometimes
for hours at a time, could have been avoided.
Bowel cancer is most diagnosed cancer in
Australia excluding non-melanoma skin cancers, and it is often lethal,
claiming about 4700 lives each year. But when it's caught early enough, it is
also highly treatable.
That is why the federal government's announcement in last year's budget that
it would set aside $43.4 million through 2008 to launch a national bowel
cancer screening program has been so highly anticipated.
Clinical trials, similar programs in countries such as
Denmark and the
UK, and the federally-funded Faecal Occult Blood Test-based pilot study
completed last June in
South Australia, Victoria and
Queensland have all met with significant success.
Experts say at least 1000 lives will be saved each year once the program is
fully rolled out. That's a conservative estimate, based on the results of the
pilot study where about 45 per cent of those invited to participate in the
screening actually did.
With education and adequate promotion that percentage will probably increase,
meaning that 1500 or even 2000 lives could realistically be saved every year,
says Graeme Young, professor of gastroenterology at Adelaide's Flinders
University.
Put another way, people who are screened are 40 per cent less likely to die
from bowel cancer than those who have not been screened.
Over the next two years nearly one million people will receive the faecal
occult blood test (FOBT) in the mail. The test detects hidden amounts of blood
in the stool, which could signify cancer. Five to 10 per cent of those who
test positive on the screening are diagnosed with cancer, while another 30 per
cent have benign tumours, and the rest are ``incidental'', says Professor
Finlay Macrae, a gastroenterologist at the Royal Melbourne Hospital who is on
both the federal and state advisory committees for the screening program.
Although the FOBT itself has been available for a long time, its use is less
than optimal _ partly because patients and sometimes even doctors find the
process of handing over stool samples embarrassing and unpleasant.
Part of the drawcard of the new system is that the testing kit is sent to your
own home and the sample collected in privacy. The sample can then be placed in
the container provided and posted to a pathology laboratory for analysis. The
results are later sent to the patient and their GP.
Along with the convenience, the federal health department says the kits are
also effective because of their simplicity. In the pilot study 92 per cent of
patients correctly completed the test kits.
But introducing another population-wide cancer screening program to follow in
the footsteps of existing campaigns against cervical and breast cancer has
proven considerably more complicated than many had hoped.
Originally scheduled to launch on May 1, the program has been delayed until
August, as the government tries to iron out the details. Health minister Tony
Abbott has been adamant the August date will stick, and experts say they are
confident it will.
But even as they praise the plan as ``historic'' and ``a breakthrough'', they
say there are several potential problems that have not been adequately
addressed.
Funding from the federal government will cover the screening test mailout and
analysis, information and a helpline, and monitoring and evaluating the
program. But the screening test itself cannot say conclusively whether a
person has bowel cancer or not _ to determine that patients need to go for a
follow-up colonoscopy.
That's a far more intrusive, and expensive, procedure that requires specially
trained professionals to carry it out. But for patients who test positive but
do not have private health insurance, it will be the state governments _ not
the Commonwealth _ who foot the bill. And therein lies the problem, according
to Macrae.
``The biggest strain is going to be on the capacity of the healthcare system
to follow up positive results,'' he says.
Ensuring that the approximately 8 per cent of patients who test positive on
the screening test are able to access colonoscopies in a timely manner is
central to the success of the program, both Macrae and Young say. They worry
that as things stand there won't be enough support to meet the expected
increase in demand, and already unacceptable waiting lists for colonoscopies
will worsen.
``There's a lot of homework to do in the next couple years,'' Macrae says.
In
Queensland the average wait time for a colonoscopy is 12 months, while
in
Western Australia it is about nine months, according to Young.
``The pilots provided a financial resource for the colonoscopies and wait
times were reasonable _ about four to six weeks.
``Our concern is that without that the public health care system will become
truly stressed and waiting lists are going to lengthen, even in the states
where the wait is ordinarily two to three months now,'' he says.
More colonoscopists will also need to be trained in order to keep up with the
expected increase in demand down the track.
But there are other dilemmas as well.
While the program will officially launch in August, not everyone in the target
55 to 75 age bracket will be eligible to participate. Not this year, anyway.
The program will only be offered to people who turn 55 and 65 this year, as
well as those who participated in the pilot studies. Next year the following
group of people who turn 55 and 65 will be invited to participate, so more
people will be added each year.
The idea is that the staggered delivery will allow time for deficiencies to be
plugged up and create a more manageable roll-out over a decade.
But what happens if you're 66 this year?
Young and Macrae say best not wait another nine years for the free government
screening. If you are in the target age group, ask your doctor about the test.
Just because you haven't been approached with a letter doesn't mean you can't
get screened _ and the cost of the test averages about $25.
As for the national screening program itself, Macrae says the gradual rollout
is more of a secondary pilot than a fully formulated policy.
``There's no better way to test the water than to turn the switch,'' he says.
That means it will most likely be a decade before the program realises its
potential, assuming it continues past 2008, when the government reassesses the
budget to determine how it should proceed.
Until then, many experts will probably be keeping their fingers crossed.